What are the clinical outcomes of (new) treatments? What is the best practice? Clinical Registries

Let’s all become the best practice

If we want to improve healthcare, we first need to know how we are doing. Which type of intervention leads to the best results? What are others with better outcomes doing differently? How much do outcomes vary between providers? What is the effect of a new drug? In other words: How can we get the best clinical results for consumers?

We provide a benchmarking system that shows the performance of healthcare institutes compared to (anonymous) others in a region, country or internationally. It is designed to support quick improvement cycles, to realise maximum improvement potential. We currently do this for over 25 medical conditions and counting.

The Dutch healthcare system has been ranked No. 1 in Europe since 2012, according to the Euro Health Consumer Index. In the Netherlands, we have established ourselves as a leading infrastructure for benchmarking quality of care for improvement and transparency purposes. This has already lead to concrete results, such as:

  • 55% lower mortality after gastric cancer surgery
  • 52% lower mortality after colorectal cancer surgery
  • Median door-to-groin time reduced from 97 to 65 minutes
  • 29% fewer re-interventions after colorectal cancer surgery
  • 16% fewer complications after acute aneurysma surgery
  • 30% increase in laparoscopic treatment for colorectal cancer
  • 22% increase in complete pathological reporting after breast cancer
  • CE-marking of underperforming breast implant repealed
  • Immediate reconstructive surgery in breast cancer increased from 13% to 27%
  • 8% reduction in colorectal cancer surgery costs
  • Potential of 38% complicated course reduction after colorectal cancer surgery
  • Potential of 28% colorectal cancer surgery cost reduction


We use standard sets but also support individual registries

We are an ICHOM and DICA partner. We use standard sets, but also support the development of new registries and can include add-on modules to existing ones. Our users typically measure outcome- and process indicators such as mortality, complications, re-interventions, volume, accessibility, involved professional disciplines, information supply, door-to-intervention times, waiting times, etc.

Our solutions encourage improvements, facilitate governance of healthcare systems, and supports efficacy studies of new medicine and snapshot studies of new intervention methods.

We believe that sustainable improvement is only possible when all stakeholders trust the results. Our solutions have advanced data quality assurance, established with assistance of medical expertise. We work with statisticians, epidemiologists and medical experts to advice on analytical methods, including risk adjustment and corrections for error. This ensures that discussions are about the outcomes, instead of about data calculations. Data management is executed by MRDM, an authority in privacy & security compliance.

To minimise data entry burden, we collect data from primary sources as much as possible. These include EMRs/EHRs, pathological systems, radio therapeutic centres and ophthalmology systems.


Our tools are

Clinical registries Understand clinical performance and variety. Discover improvement potential. Providers receive weekly updates in an online dashboard on their clinical performance, compared to peers. The reports pinpoint best practices and drive improvement. Providers can choose to share results with healthcare stakeholders, embedded in strict governance agreements. ICHOM and DICA proof. Available for any medical condition. Implant registries Early warnings and track & trace on implants Early warnings about a brand, implant type or batch. We follow the entire process chain from manufacturer to implant removal or the passing of the patient. MRDM, functioning as a trusted third party, informs providers if and which individual patients should be informed. We execute the national implant register on multiple implant types on behalf of the Dutch Ministry of Health, Welfare and Sports. Efficacy studies and clinical trials Real-life data on the outcomes of new drugs/treatments Pharmaceutical firms know the real-life effect of their new drugs and can ask other relevant questions, without impeding privacy & security regulations. We combine with existing clinical registries as much as possible, to limit the administrative burden. Snapshot studies Real-life data for temporary studies Medical associations or researchers receive real-life data to perform further analyses for research purposes. We comply to privacy & security regulations. We can add snapshot studies to existing clinical registries when available.
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